What is Thalassaemia? — Understanding the Blood Disorder and How You Can Help
Thalassaemia is a genetic blood disorder that stops the body from producing enough hemoglobin, the protein in red blood cells that carries oxygen throughout the body. Without enough hemoglobin, organs and tissues do not get the oxygen they need, which can lead to severe anemia, fatigue, and serious health problems.
Children with thalassaemia often need regular blood transfusions throughout their lives to survive. Along with transfusions, they also require treatment to remove excess iron that builds up from repeated blood transfusions.
Types of Thalassaemia
Thalassaemia comes in two main types: Alpha Thalassaemia and Beta Thalassaemia. Each type affects the body differently and requires careful care.
Alpha Thalassaemia
Alpha thalassaemia happens when the body produces too few alpha globin chains.
Early diagnosis is essential, especially for expecting mothers, to manage risks and provide proper care.
Beta Thalassaemia
Beta thalassaemia is common in Pakistan, affecting about 6% of the population. In this type, red blood cells are fragile and cannot make enough healthy hemoglobin.
Symptoms of Beta Thalassaemia Major include
Without regular treatment, patients cannot survive. Blood transfusions are required every month, sometimes even more often. Over time, repeated transfusions cause iron buildup in the body, which is treated using iron chelation therapy.
How Thalassaemia is Treated
While there is no simple cure, several treatments help patients lead healthier lives:
Regular care, proper nutrition, and medical supervision are essential to help patients live longer and healthier lives.
Living with Thalassaemia
Thalassaemia patients not only need medical treatment but also emotional support. Families, doctors, and organizations like Alizaib Foundation play a vital role in helping patients cope with the daily challenges of this condition. Every donation and act of support directly impacts these lives, providing the treatment, care, and hope that patients desperately need.
Prevention and Awareness
While thalassaemia is an inherited condition, taking preventive steps can save countless lives. Premarital and prenatal genetic screening can help identify carriers, and educating families about managing and preventing the disease ensures better outcomes. Community awareness campaigns encourage voluntary blood donation and support for patients, creating a stronger network of care throughout the country.
How You Can Help
You can make a real difference today. Every blood donation can be life-saving for a child with thalassaemia, sponsoring a patient helps cover the cost of transfusions and treatment, and volunteering or spreading awareness inspires others to take action. At Alizaib Foundation, your contribution ensures that every patient receives free, safe, and timely care. Together, we can restore health, give hope, and build a thalassaemia-free Pakistan. Join our mission today and save a life.
